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Yale Alumni Magazine: Dyslexic Med Student Wins Fight for Extra Time

“If you are (or have a family/friend) who is dyslexic or has a learning disability please share this article which my friend Capt. Thomas Holme shared with me.” ~Thomas

Dyslexic Med Student Wins Fight for Extra Time

Yale Alumni Magazine May/June 2011 by Carole Bass ’83, ’97MSL

Fred Romberg ’12MD can build an airplane and teach you to fly it. He can win a grant for a “High-Resolution Time-Frequency Analysis of Neurovascular Responses to Ischemic Challenges.”

And Romberg can read—very slowly.

With Help from Yale researchers, an aspiring doctor takes on the medical licensing board.


Both parts of that last sentence are crucial to understanding Romberg’s story of triumph and adversity. A 42-year-old student at the Yale School of Medicine, Romberg has severe dyslexia. His latest triumph—a legal settlement giving him extra time on the U.S. Medical Licensing Examination—packs less drama than some of his previous accomplishments.

But the settlement underscores a catch-22 for people with learning disabilities: if they succeed despite adversity, they may be seen as not truly disabled.

Undiagnosed until he was a young adult, Romberg struggled in school and left after tenth grade. But he got a GED, a bachelor’s degree, and a master’s in engineering before coming to Yale in 2006. By this spring, he expects to have completed all his med school requirements—except the licensing exam.

Under the Americans with Disabilities Act, he asked the National Board of Medical Examiners, which administers the exam, for extra time on the test. The private agency refused: despite the recommendations of Yale experts, it decided that Romberg hadn’t proved he was “substantially limited in a major life activity.”

“They would take and use any of my accomplishments against me,” Romberg says. “I have a graduate degree from Caltech; I worked for Caltech for 12 years. ‘Well, he obviously doesn’t need accommodations.’”

For help appealing the NBME decision, Romberg turned to Sally Shaywitz, a professor at the medical school and a leading dyslexia researcher. “Fred’s entire history and testing confirmed” his need for accommodations, Shaywitz says. “It was really shocking when he was turned down.”

She encouraged Romberg to file a complaint with the U.S. justice department, which opened an investigation. In the February 23 settlement, the NBME agreed to give Romberg twice the usual testing time. The board “denies that it has violated the ADA in any way,” the settlement specifies. In a statement, the NBME says it reached an “amicable resolution” after the justice department “provided additional documentation relating to Mr. Romberg.”

Shaywitz calls the settlement “a clarion call to the testing agencies. You have to follow the law, and you have to follow science.”

The website of the Yale Center for Dyslexia and Creativity, which Shaywitz runs with her husband Bennett, is full of stories of high-achieving dyslexics: actors, writers, scientists, and doctors. Listen to Shaywitz and you can picture Dr. Fred Romberg joining them.

“He is an engineer and has great facility with technology,” she says. “I expect him to invent new pieces of equipment that will improve anesthesiology. Yale medical school will be very proud to count Fred Romberg as an alumnus.”

(Source: http://www.yalealumnimagazine.com/issues/2011_05/lv_romberg.html)

Related Article: If you can’t read this, you may need more time

St. Pete TImes: Educator and author Diane Ravitch battles the system she helped to build

“I had the honor of being at Dr. Ravitch’s speech this week at the FSBA.  She was amazing!” ~Thomas

Educator and author Diane Ravitch battles the system she helped to build

By Tom Marshall, Times Staff Writer, In Print: Thursday, June 9, 2011

Diane Ravitch has never been one to mince words.

Twenty years ago, she was an outspoken advocate for more standardized testing, more accountability, less fluff in the classroom. As an assistant secretary of education under President George H.W. Bush, she helped launch the back-to-basics movement.

These days her language is still fiery. But Ravitch, a research professor at New York University, now aims her ire at a different target: all those ideas she used to champion.

“Particularly in Florida, it’s a disaster,” she said during a visit Wednesday with the St. Petersburg Times editorial board. “What we are doing is killing creativity, originality, divergent thinking. All the things we need in the 21st century are what we’re squeezing out of a generation of children.”

In a speech today at the Florida School Boards Association annual meeting in Tampa, Ravitch plans to continue her full-throated campaign to “save public education” from its obsession with testing.

“This is institutionalized fraud,” she said, referring to the phenomenon of ever-rising scores. “Because we are graduating just as many kids who can’t read as we did 10 years ago.”

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CLICK HERE TO READ STORY: A weekend interview with Diane Ravitch on teachers, testing and Florida’s progress

Week in Review, June 8th, 2011

Week in Review, June 8th, 2011

Update from Special Budget Workshop Meeting

Update from Special Budget Workshop Meeting Tuesday, June 7th, the Citrus County School Board met for a special budget workshop.  A major topic of this workshop was funding  the Paraprofessional Teacher Aides for the 2011-2012 school year.  The workshop was attended by nearly all of  our school principals.   Each grade level  (elementary, middle, and […]

ChronicleOnline: School summer feeding program free for area youth

Summer feeding program free for area youth Inverness and Lecanto sites open; CR closed By Cheri Harris, Chronicle, Wednesday, June 8, 2011 Free breakfast and lunch available for any local children are back, and the organizer would like to see more hungry mouths at the tables. Roy Pistone, director of food services for the Citrus [Click title above for more…]

ChronicleOnline: Citrus FCAT Scores Fare Well

School district fares well in FCAT Citrus ahead of state averages By Cheri Harris, Chronicle, Wednesday, June 8, 2011 In a year that saw the launch of a more rigorous test and a grading system designed to avoid sharp highs and lows, the Citrus County School District distinguished itself. Florida Comprehensive Achievement Test (FCAT) results [Click title above for more…]

ChronicleOnline: Healing within Her Grasp

For those who don’t know our daughter was born with a Port Wine Stains (PWS) that covers much of her left leg and other places on her body.  This young lady Megan is an inspiration to us all. ~Thomas Young stroke victim has healing within her grasp Device helps with hand movement By Chris Van [Click title above for more…]

ChronicleOnline: CRMS students get hands-on experience

CRMS students get hands-on experience with the water cycle Wednesday, June 1, 2011 Cortnie Seymour, a Crystal River Middle School eighth-grader, shares her story about the water cycle with a group of Crystal River Primary School Crystal River Middle School science students got more than their feet wet while studying the Floridan Aquifer and the [Click title above for more…]

ChronicleOnline: School summer feeding program free for area youth

Summer feeding program free for area youth

Inverness and Lecanto sites open; CR closed

By Cheri Harris, Chronicle, Wednesday, June 8, 2011

Free breakfast and lunch available for any local children are back, and the organizer would like to see more hungry mouths at the tables.

Roy Pistone, director of food services for the Citrus County School district, said the two local open sites for the school board’s summer feeding program are at Inverness Primary School and Lecanto Middle School.

IPS is at 206 S. Line Ave and the cafeteria is open through June 30 and July 1 through July 29, Monday through Friday, and closed July 4 for the holiday. Hours are 8:30 to 9 a.m. for breakfast and 11:30 a.m. to noon for lunch.

Lecanto Middle School is at 3800 W. Educational Path, Lecanto, and the cafeteria is open Monday through Thursday through June 30 and July 5 through 21. Breakfast is from 8 to 8:30 a.m. and lunch is 11:30 to noon.

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ChronicleOnline: Citrus FCAT Scores Fare Well

School district fares well in FCAT

Citrus ahead of state averages

By Cheri Harris, Chronicle, Wednesday, June 8, 2011

In a year that saw the launch of a more rigorous test and a grading system designed to avoid sharp highs and lows, the Citrus County School District distinguished itself.

Florida Comprehensive Achievement Test (FCAT) results released recently showed the district ahead of state averages in 14 out of 16 scored areas.

“I think when you look at all the cuts and jobs we had to not fill in the last couple of years and look at the consolidation of jobs, I think when you see results like this, it shows the hard work the teachers, staff and kids do every day to be successful,” said Sandra “Sam” Himmel, superintendent of Citrus County schools.

For Himmel, the most remarkable thing about the results is the number of schools with 85 percent or more students scoring high in reading and math.

“I think when you get in those numbers, I think that’s phenomenal,” she said, “and it just goes back to all the hard work that everybody does.”

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ChronicleOnline: Healing within Her Grasp

For those who don’t know our daughter was born with a Port Wine Stains (PWS) that covers much of her left leg and other places on her body.  This young lady Megan is an inspiration to us all. ~Thomas

Young stroke victim has healing within her grasp

Device helps with hand movement

By Chris Van Ormer, Wednesday, June 1, 2011

Megan Ledford was born with Sturge-Weber Syndrome, a rare congenital neurological disorder associated with seizures. The affliction has caused the teen to have strokes which have left her debilitated. Above, she uses a device on her hand called a Saebo Flex that lets her flex her fingers to make her grip stronger. (Photo by Matthew Beck)

Chronicle’s note: The Chronicle will follow Megan’s progress through her recuperation and her senior year at CREST.

Strokes are no stranger to 17-year-old Megan Ledford.

She had her first stroke at 3 months of age. Her latest stroke hit her in February. Her mother said the stroke was the result Megan’s stress about the death of her stepfather in December.
Because Megan was born with Sturge-Weber Syndrome, a rare congenital neurological disorder associated with seizures, the Homosassa girl has had more strokes, mini-strokes and seizures than her mother, Kelly Kefauver, can recount.
“When she came home, she couldn’t walk or hold her own weight,” Kefauver said.

After three weeks of working on walking with her, Megan’s family got her out of the wheelchair. Megan has a brother, Logan Dimick, 10, and a sister, A’Laura Ledford, 16.

“They would get up and they would help her walk,” Kefauver said. “When I brought her home from the hospital, my daughter came out and helped me get her out of the car. They would push her around in the wheelchair. Because they’ve had to deal with it all their lives, that’s all they know: To help their sister.”

Megan is a happy girl, a student at CREST, Citrus Resource for Exceptional Student Transition, in Lecanto. The port wine stain on her engaging face was considered just a birthmark when she was born. But it is a symptom of Sturge-Weber Syndrome, which was not diagnosed until she had the first stroke at the age of 3 months.

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